Leukodystrophies
The Stennis Foundation is a nonprofit committed to raising awareness of the Leukodystrophies, and to raising funds for Leukodystrophies research.
*Song is "Only Time" by Enya....
Uploaded: November 30, 1999 at 12:00 am
Author: iheartnytk3
Length: 03:35
Rating: 5.00
Views: 760
Tags: Awareness Leukodystrophies Nonprofit Research Stennis
The "One Step Closer" Walk for Leukodystrophy is the main fundraiser for The Stennis Foundation.
*song is "Unwritten" by Natasha Beddingfield.
Uploaded: November 30, 1999 at 12:00 am
Author: iheartnytk3
Length: 06:13
Rating: 1.00
Views: 246
Tags: Awareness Foundation Leukodystrophies Nonprofit Research Stennis
This is from the Walk we had in Brighton, MA (near Boston). There aren't many pics, because my camera wasn't working right. But...
Uploaded: November 30, 1999 at 12:00 am
Author: iheartnytk3
Length: 01:12
Rating: 1.00
Views: 664
Tags: Awareness Foundation Leukodystrophies Nonprofit Research Stennis
This short movie was made in march 2006, as his illness progresses it has taken away his ability to walk, it's nice to remember that...
Uploaded: November 30, 1999 at 12:00 am
Author: MakoNZ
Length: 00:26
Rating: 5.00
Views: 248
Tags: corey Leukodystrophy Metachromatic MLD
Scarlett walks up the steps. Scarlett was born with Krabbe (Globoid Cell) Leukodystrophy. Scarlett received a stem cell transplant at birth to halt...
Uploaded: November 30, 1999 at 12:00 am
Author: lfsfedorak
Length: 01:33
Rating: N/A
Views: 482
Tags: disease Fedorak Krabbe miracle Scarlett transplant treatment
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